Understanding Huntington’s Disease
Huntington’s Disease is a neurological condition caused by the inheritance of an altered gene. The death of brain cells in certain areas of the brain results in a gradual loss of cognitive physical and emotional function. Huntington's disease is a complex and severely debilitating disease, for which there is no cure.
Facts about Huntington’s Disease
- Huntington's Disease is found in every country in the world.
- Men and women are at equal risk of inheriting the disease.
- The child of an affected parent has a 50 per cent chance of inheriting the gene and developing the manifestations of Huntington’s disease.
- In Australia over 1,800 people have HD and approximately 9,000 are at risk.
Symptoms of Huntington’s Disease
- The most common symptom is jerky movements of the arms and legs, known as ‘chorea’.
- Chorea usually starts as mild twitching and gradually increases over the years.
- Lack of coordination and a tendency to knock things over
- Walking difficulties
- Speech and swallowing difficulties.
- Short-term memory loss
- Difficulties in concentrating and making plans.
- Depression (around one third of people with Huntington's disease experience depression)
- Mood swings, apathy and aggression
References:
Huntingtons Disease - Health Conditions And Treatments
Huntingtons Disease Facts
Health Direct
How can CPL help?
CPL can support you with day-to-day tasks, depending on your needs, from getting ready for school, university or work, right through to mealtime assistance and medication.
Getting out into your community
Community access is an important part of everyday life. As this looks different for everyone, we will meet with you and your family to discuss what you like to do and how we can support you.
CPL provides 24/7 Supported Independent Living services, and has a number of vacancies in accessible homes.
Employment and Training opportunities
There are a range of disability employment and training pathways to help people who have Huntington's Disease to re-enter or join the workforce.
Give us a call on 1800 275 753 to discuss your support needs with our team, or send an online enquiry and we'll be in touch.
Get In Touch
Get in touch
Find out what services you can access in your area or check out your nearest CPL centre.