Understanding spina bifida

Spina bifida is a birth defect that occurs when the spine and spinal cord don't form properly. It's a type of neural tube defect (NTD).

The neural tube is the structure in a developing embryo that eventually becomes the baby's brain, spinal cord and the tissues that enclose them. 

Spina bifida might cause physical and intellectual disabilities that range from mild to severe. The severity depends on: 

  • the size and location of the opening in the spine. 
  • whether part of the spinal cord and nerves are affected. 

Spina bifida is one of the most common birth defects in Australia, with around 150 babies are born with spina bifida each year. 

NTDs occur in the first weeks of pregnancy while the brain and spinal cord are forming. Treatment of individuals who have spina bifida includes surgery, medication and physiotherapy. There is no cure for spina bifida as the nerve tissue cannot be replaced or repaired.

The symptoms of spina bifida vary from person to person, but can cause:  

  • leg weakness 
  • loss of feeling in parts of the skin 
  • bladder or bowel incontinence 
  • learning difficulties 

Closed neural tube defects are often recognized early in life due to an abnormal tuft or clump of hair or a small dimple or birthmark on the skin at the site of the spinal malformation.

How can CPL help?

Support at home 

CPL can support you with day-to-day tasks, depending on your needs, from getting ready for school, university or work, right through to mealtime assistance and medication.

Getting out into your community

Community access is an important part of everyday life. As this looks different for everyone, we will meet with you and your family to discuss what you like to do and how we can support you.

Independent living

CPL provides 24/7 Supported Independent Living services, and has a number of vacancies in accessible homes.

Employment and Training opportunities

There are a range of disability employment and training pathways to help people who have Parkinson's to re-enter or join the workforce.

 

Give us a call on 1800 275 753 to discuss your support needs with our team, or send an online enquiry and we'll be in touch.

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